Workshop on Long-term Preservation & Management of Electronic Health Record


April 5-6, 2011, NIH/National Library of Medicine, Bethesda, Maryland, USA


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  Long-term Preservation & Management of EHR [NIH/NLM, Bethesda, Maryland, April 5-6, 2011]

Workshop Schedules...
Meeting Location: Lister Hill Auditorium (Building 38A)
TimeTuesday (April 5, 2011)
08:00 - 09:00 Registration / Logistics
  I. Vision and Direction
09:00 - 09:20 Welcome Address:
Dr. Donald Lindberg, Director of the National Library of Medicine
Dr. Milton Corn, Deputy Director for Research and Education, NIH/NLM
Ms. Kathleen Roberts, Associate Director of Federal and Industrial Relations Office, NIST
Mr. Robert Chadduck, Principal Technologist, Acting Director of Center for Advanced Systems and Technologies, NARA
09:20 - 09:50 KEYNOTE
Emerging Computational Approaches to EHR Interoperability - The Key to Long-term Preservation of EHR Data
Dr. William W. Stead, M.D.
Associate Vice Chancellor for Strategy/Transformation
Director of the Informatics Center, and CIO at
Vanderbilt University Medical Center
Chief Information Architect for Vanderbilt University
09:50 - 10:20 The Current EHR Landscape and Its Implications for Preservation
Dr. Charles Friedman
Chief Scientific Officer
10:20 - 10:50 Winning the Future: Digital Preservation to Fuel Progress
Dr. Chris Greer
Assistant Director for Information Technology Research and Development
OSTP, White House
10:50 - 11:20 Q/A Session #1
Dr. Milton Corn, Deputy Director for Research and Education
Dr. William W. Stead, Dr. Charles Friedman, Dr. Chris Greer
11:20 - 11:40 Coffee Break
11:40 - 12:10 Information Lifecycle Management - Using Our Radiology Systems at BIDMC As A Model For How Tiered Retention of Information Can Work
Dr. John D. Halamka
(via video conferencing call)
CIO at Beth Israel Deaconess Medical Center
CIO at Harvard Medical School
Chairman of the New England Healthcare Exchange network (NEHEN)
co-Chair of the national HIT Standards Committee
12:10 - 12:40 VA's Electronic Health Record: Providing Information for Clinical Care and Data for VA Health Research
Mr. John Quinn
Director of the National Data System
US Department of Veterans Affairs
12:40 - 13:40 Lunch (on your own)
  II. Voices of Experience
13:40 - 14:10 Our clinical information: When our present is past, what will the future learn?
Dr. Mark Frisse
Accenture Professor of Biomedical Informatics
Vanderbilt Center for Better Health
14:10 - 14:40 Important of LOINC Usage for Lab Test Results, Clinical Observations, and Diagnostic for Long-term
Dr. Clement McDonald
Director of Lister Hill National Center for Biomedical Communication
14:40 - 15:10 Virtual Lifetime Electronic Record (VLER)--Health Information Exchange in the Department of Veterans Affairs (VA)
Ms. Jennifer Teal, MS, RHIA, CPC
Health Information Management Specialist
Health Data and Information, Office of Health Information
US Department of Veterans Affairs
15:10 - 15:40 Q/A Session #2
Dr. Umesh Thakkar, AAAS Science and Technology Policy Fellow, VA
Mr. John Quinn, Dr. Mark Frisse, Dr. Clement McDonald, Ms. Jennifer Teal
15:40 - 16:10 Coffee Break
16:10 - 17:10 Breakout Sessions

Session 1 Session 2 Session 3
Pre-Questions for Interchange of Electronic Health Records Pre-Questions for How to preserve and reuse of Electronic Health Records for Research? Pre-Questions for Institutional Policy of Sharing Preserved Electronic Health Records
Dr. Mark Frisse Mr. Larry Johnson Ms. Nancy Orvis
Lister Hill Auditorium Visitor's Center-I B1 Conference Room
(Rm# B1N30Q, one floor below auditorium)

17:10 - 17:30
Breakout Session Summary from Breakout Chairs
Mr. Wo Chang, Manager of the Digital Media Group, NIST
Dr. Mark Frisse, Mr. Larry Johnson, Ms. Nancy Orvis

  III. For the Foreseeable Future: Possibilities and Pitfalls
TimeWednesday (April 6, 2011)
09:00 - 09:05 Welcome Back
Dr. Milton Corn
Deputy Director for Research and Education
09:05 - 09:35 Applications and Architectures: Exploring Rate-Limiting Challenges to Interoperability
Dr. Lynn H. Vogel
University of Texas M.D. Anderson Cancer Center
09:35 - 10:05 W3C Semantic Web Healthcare and Life Science Interest Group (HCLSIG)
Dr. Susie Stephens
Director of In Silico Immunology
Johnson & Johnson Pharmaceutical Research & Development
10:05 - 10:35 The SHARP Project on Secondary Use of EHR Data
Dr. Christopher G. Chute
The Mayo Clinic of Medicine
10:35 - 11:05 Q/A Session #3
Mr. Robert Chadduck, Principal Technologist, Acting Director of Center for Advanced Systems and Technologies, NARA
Dr. Lynn H. Vogel, Dr. Christopher G. Chute, Dr. Susie Stephens
11:05 - 11:25 Coffee Break
11:25 - 12:25 Open Discussion of Possibilities and Pitfalls
Dr. Ken Thibodeau, Senior Guest Scientist, NIST
(Former Director of the Center for Advanced Systems and Technologies, NARA )

All workshop participants should already submitted their responses during the online registration for the following two questions:
  1. What is the single most important thing that needs to be done to enable preservation and sharing or re-use of EHR?
  2. What is the single greatest obstacle to preservation and sharing or re-use of EHR?
Questions Received So Far...

- Facilitator presents an organized summary of participant responses
- For each question, facilitator asks submitters to elaborate & invites others to comment.
- For each topic, facilitator asks participants to identify anything relevant that they have done, are doing or plan to do in the near future.

12:25 - 12:40 Wrap Up / Next Step
Ken Thibodeau, Wo Chang


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Last updated: March 1, 2011

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